6 Things I Learned from Fighting Invisible Diseases
by Aimee Halpin
It started the year I got engaged. I didn’t see it coming quite honestly. I was 23 years old and invincible…or so I thought.
My urine was the color of port-wine. My skin was thin as paper and there were blisters all over my hands and arms. Not just any blisters…blisters the size of pennies that felt like they contained acid when they burst.
There were seven months until my wedding and I was not only losing skin when the blisters popped, but my hand and arms were scarring terribly. I later found out it was the beginning of a life-long battle with Porphyria Cutanea Tarda and Hereditary Hemochromatosis.
Fibromyalgia was the next diagnosis. At this point, I was fed up with life trying to take me down. I could barely move from the pain.
What did I do?
1. Never give up. I know it’s easier said than done. After the initial shock, sadness and despair wears off, I always got mad. Mad was good. It meant I was ready to fight.
2. Make a plan. Do not sit back and wait for your doctors to call you. Research your options and formulate what needs to happen next…but don’t obsess over your diseases. Let it go after the plan is made because the internet does not know everything.
5. Never lose sight of who you are. This is especially important because you are going to want to shut down. Write down a list of things you love to do and keep it in sight. It took me two years of pain before I came back to yoga, but it helped me tremendously remembering that I am not my pain.
We would love to hear from you...leave a comment below!